In a written answer on 15 July 2026, European Commissioner for Innovation, Research, Culture, Education and Youth, Ms Zaharieva, told the European Parliament that the Commission does not set aside specific funding for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) research under Horizon Europe, but pointed to existing call topics that could support the field. The reply, responding to a question led by MEP Verena Mertens (PPE) and six other centre-right MEPs, aims to reassure patient groups and researchers that the EU is aware of the disease's burden while avoiding a commitment to dedicated programmes.
The answer reveals that the Commission has not allocated earmarked funds to ME/CFS under Horizon Europe, but highlights two relevant call topics: 'Tackling high burden for patients and under-researched medical conditions' from the 2025 Work Programme, and 'Advancing research on the prevention, diagnosis, and management of post-infection long-term conditions' from the 2026-2027 Work Programme. The Commission also notes its support for the European Partnership for Brain Health, which may cover ME/CFS. On uptake, the Commission says it organises info days and supports National Contact Points to raise awareness of funding opportunities, but does not announce new measures to boost Member State participation. On future calls, the Commission states it 'may consider' proposing topics on under-researched conditions, subject to the next Multiannual Financial Framework negotiations.
the Commission acknowledges the problem but relies on existing instruments rather than new, targeted action. This leaves ME/CFS advocates and researchers disappointed, as they had hoped for dedicated funding lines. The answer signals that any future shift depends on budget negotiations and strategic priorities agreed with Member States. Institutional follow-up is expected in the context of the next MFF and the upcoming Horizon Europe work programmes, but no timeline is given.